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Summary Report National Forum on the FASD Diagnostic Guidelines
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Appendix 1: Agenda
Day One - March 8, 2005
| 9:00 | Welcome and Opening Remarks; Introductions |
| 9:30 | Background to the Forum |
| 9:45 | Development of the Diagnostic Guidelines |
| 10:15 | Overview of the Guidelines |
| 10:45 | Refreshments |
| 11:00 | Small Discussion Groups |
| 11:45 | Insights from Discussion |
| 12:00 | Lunch (provided) |
| 1:00 | Overview of Current Training Initiatives |
| 1:45 | Reaction/Comments |
| 2:00 | Small Discussion Groups - Generating Ideas for a National Training Plan |
| 3:30 | Group Reports on Training Ideas |
| 4:00 | Summary of Day One |
| 4:30 | Adjourn |
Day Two - March 9, 2005
| 9:00 | Debrief of Day One and Overview of Day Two |
| 9:10 | Current Data Collection and Monitoring Systems |
| 9:45 | Data Collection Discussion |
| 10:30 | Refreshments |
| 10:45 | Priorities for Data Collection and Monitoring System |
| 11:45 | Insights from Discussion |
| 12:00 | Lunch (provided) |
| 1:00 | Public Health Agency of Canada (PHAC) Remarks |
| 1:15 | Priority-setting Exercise - Small Groups |
| 1:30 | Present List of Priorities to Large Group |
| 2:00 | Discussion/Clarification of Priorities |
| 2:30 | Individual Ranking of Priorities |
| 2:45 | Refreshments |
| 3:00 | Presentation and Discussion of Group Priorities |
| 4:00 | Closing Remarks |
| 4:15 | Adjourn |
Appendix 2: Invitation and Participant Lists
Invitation List
| Name | |
| 1. Sally Longstaffe | 2. Christine Loock |
| 3. Ted Rosales | 4. Albert Chudley |
| 5. Claudine Longboat-White | 6. Nicole Leblanc |
| 7. Gina Muckle | 8. Ted Rosales |
| 9. Gideotte Koren | 10. Valerie Flynn (Ottawa) |
| 11. Claudette Landry | 12. Margaret Clarke |
| 13. Leigh Wincott | 14. Hasu Rajani |
| 15. Mary Cox Millar | 16. Sterling K. Clarren |
| 17. Dan Dubovsky | 18. Deborah Pace |
| 19. Denise Stone | 20. Linda L. Storoz |
| 21. Julie Conry | 22. Liz Lawryk |
| 23. Darren Joslin | 24. Heidi Schroter |
| 25. Michelle Dubik | 26. Wendy Burgoyne |
| 27. Ginny Lane | 28. Dolores Logan |
| 29. Winnie Banfield | 30. Lindsay Crowshoe |
| 31. Roxanne Manning | 32. Selma Ford |
| 33. Sherri Wilson | 34. Mary Ellen Turpel Lafond |
| 35. Andrea Noonan | 36. Dawn Bruyere |
| 37. Brad Bell | 38. Kent Saylor |
| 39. Marie Adele Davis | 40. Sarah Shea |
| 41. Joachim Kapalanga | 42. Francine Knoops |
| 43. K.O. Asante | 44. Elaine Orrbine |
| 45. Anne Fuller | 46. Vyta Senikas |
| 47. Gail Andrew | 48. John Service |
| 49. Maureen O'Donnell | 50. Arthur Blue |
| 51. Dawn Ridd | 52. Nikki Bansil |
| 53. Peter Noonan | 54. Naho |
| 55. Soo-Hong Uh | 56. Jo Nanson |
| 57. Nicole Chatel | 58. Louise Floyd |
| 59. Johannes Botha | 60. Carol Woodworth |
| 61. Lori Vitale-Cox | 62. Rachelle Best |
| 63. Barb Benton | 64. Bryce Larke |
| 65. Stacy Taylor | 66. Mercedes Mompel |
| 67. Mary Lynch | 68. Catherine Royle |
| 69. Darlene Oakes | 70. Colleen Greene |
| 71. Valerie Massey (no fax) | 72. Nancy Taylor |
| 73. Lindsay Crowshoe (no fax) | 74. Kathy Inkpen |
| 75. William Vitale (no fax) | 76. Denise Stone |
| 77. Diane Boswall | 78. Sandy Steinwender |
| 79. Marie-Claude Paquette | 80. Sonia Morin |
| 81. Diane Fast | |
| PARTICIPANT NAME | ADDRESS |
|
ANDREW, Dr. Gail
|
Glenrose Rehab Hospital
10230-111 Avenue Edmonton, Alberta T5G 0B7 |
|
ASANTE,
Physician |
Dr. Kwadwo Asante Centre for FAS Asante Centre |
|
BAMBRICK, Tammy
Senior Policy Analyst |
Public Health Agency of Canada
FASD Team Tunney's Pasture Ottawa, ON K1A 0K9 |
|
BANFIELD, Winnie
FASD/ECD Program Coordinator |
Nunavut Health and Social Services
Population and Public Health Division P.O. Box 100, Station 1000 Iqaluit, Nunavut X0A 0H0 |
|
BEATON, Barb
Program Development Officer |
Department of Health and Social
Services
6th Floor, Centre Square Tower Children's Programs Box 1320 ECD, Family Support Yellowknife, Northwest Territories X1A 2L9 |
|
BELL, Brad
Manager |
Early Childhood and Prevention
9010 Quartz Road P.O. Box 2703 Whitehorse, Yukon YlA 2C6 |
|
BEST, Rachelle
Coordinator, Diagnostic and Support Team |
Child Development Centre
Box 2703 Whitehorse, Yukon YlA 2C6 |
|
BOTHA, Dr. Johannes
Family Physician |
Lakeland Centre for FASD
Box 381 Redwater, Alberta T0A 2OV |
|
BRUYERE, Dawn
Aboriginal Nurses Association |
56 Sparks Street
Suite 502 Ottawa, Ontario K1P 5A9 |
|
CHATEL, Nicole
Pediatrician |
Stanton Territorial Health Authority
Stanton Medical Clinic 550 Byrne Road P.O. Box 10 Yellowknife, Northwest Territories X1A 2N1 |
|
CHUDLEY, Dr. Albert
Head of the Section of Genetics and Metabolism |
Winnipeg Children's Hospital
FE 229-820 Sherbrooke Street Winnipeg, Manitoba R3A 1R9 |
|
CONRY, Dr. Julianne
Psychologist |
Asante Centre for FAS
3060 St. Andrews Avenue North Vancouver, British Columbia V7N 1Z6 |
|
COOK, Dr. Jocelynn
|
Public Health Agency of Canada
FASD Team Tunney's Pasture Ottawa, ON K1A 0K9 |
|
COX, Lori Vitale
Psychologist |
Education Division of Elsipogtog
First Nations 342 Big Cove Road Elsipogtog First Nations, New Brunswick E4W 2S3 |
|
DUBIK, Michelle
FAS Community Program Coordinator |
Healthy Child Manitoba
219-114 Garry Street Winnipeg Manitoba R3C 4V6 |
|
DUBOVSKY, Dan
FAS Specialist, SAMHSA |
FAS Centre of Excellence
2101 Gaither Road Suite 600 Rockville, Maryland 20850 |
|
FAST, Dr. Diane
Psychiatrist |
BC Women's and Children's
Hospital
4480 Oak Street Vancouver, British Columbia V6H 3N1 |
|
FLYNN, Valerie
|
FNIHB
FASD Team Tunney's Pasture Ottawa, Ontario K1A 0K9 |
|
FORD, Selma
Director of Health |
Inuit Tapiriit Kanatami
170 Laurier Street West Suite 510 Ottawa, Ontario K1P 5V5 |
| JOSLIN, Darren Manager |
Alberta Children Services Strategic Initiatives 5th Floor, Sterling Place 9940 -106 Street Edmonton, Alberta T5K 2N2 |
| KAPALANGA, Dr. Joe Physician |
Summerside Medical Centre 475 Granville Street North Summerside, Prince Edward Island C1N 3N9 |
| KOREN, Dr. Gideon Physician |
The Hospital for Sick Children 84 Lynn Haven Road Toronto, Ontario M6A 2K9 |
| LANDRY, Claudette Project Manager, Public Health |
Early Childhood Initiatives Department of Health and Wellness P.O. Box 5100 Fredericton, New Brunswick E3B 5G8 |
| LANE, Ginny Consultant/Research - FASD |
HEPSUA - Program Support Unit A 1st Floor, 3475 Albert Street Regina, Saskatchewan S4S 6X6 |
| LAWRYK, Liz Chief Clinical Examiner |
OBD Triage Institute P.O. Box 1289 Bragg Creek, Alberta T0L 0K0 |
| LOGAN, Dr. Dolores | Regina Community Clinic 1106 Winnipeg Street Regina, Saskatchewan S4R 1J6 |
| LONGBOAT-WHITE, Claudine | Kenora Area Health Access Centre Box 320 Keewatin, Ontario P0X 1C0 |
| LOOCK, Dr. Christine | Sunny Hill Hospital 3644 Slocan Street Vancouver, British Columbia V5M 3E8 |
| LYNCH, Mary BSW, RSW Early Childhood Social Worker |
Family and Community Services 3 Wynn Street Rothesay, New Brunswick E2E 2B4 |
| MANNING, Roxanne Coordinator, Prevention Services |
Community Services P.O. Box 578 Halifax, Nova Scotia B3J 2S9 |
| NAHO | 56 Sparks Street Suite 400 Ottawa, Ontario K1P 5A9 |
| NOONAN, Peter | Queen Elizabeth Hospital Paediatric Clinic P.O. Box 6600 Charlottetown, Prince Edward Island C1A 8T5 |
| O'DONNELL, Dr. Maureen Consultant |
Ministry of Health Services 7-1, 1515 Blanshard Street Victoria, British Columbia V8W3C8 |
| RIDD, Dawn | Manitoba Healthy Living Healthy Population Unit 300 Carleton Street Room 2097 Winnipeg, Manitoba R3B 3M9 |
| RIVET, Colette Director, Strategic Operations |
Canadian Centre on Substance Abuse 75 Albert Street, Suite 300 Ottawa, ON K1P 5E7 |
| ROSALES, Dr. Ted | P.O. Box 21005 St. John's, Newfoundland A1A 5B2 |
| ROYLE, Catherine Program Consultant |
Prenatal and Early Child Development Department of Health & Community Services P.O. Box 8700 St. John's, Newfoundland A1B 4J6 |
| SMITH, Dr. R. Garth | Canada Paediatric Society 2204 Walkley Road Suite 100 Ottawa, Ontario K1G 4G8 |
| STONE, Denise Acting Coordinator Special Needs Policy and Program Development |
Early Childhood Development Services P.O. Box 578 Halifax, Nova Scotia B3J 2S9 |
| TAYLOR, Nancy Co-ordinator, Pre-Primary Program |
Department of Education P.O. Box 578 Halifax, Nova Scotia B3J 2S9 |
| TAYLOR, Stacy RASD Resource and Support Services Coordinator |
Moncton Headstart Inc. 111 Mountain Road Moncton, New Brunswick E1C 2S9 |
| UH, Soo-Hong Consultant |
Ministry of Health Services c/o Nayo Consulting 2985 Rutland Road Victoria, British Columbia V8R 3R5 |
| WILSON, Sherri Consultant/Research - FASD |
Alberta Health and Wellness 23rd Floor, Telus Plaza North Tower 10025 Jasper Avenue Edmonton, Alberta T5J 2N3 |
| WINCOTT, Dr. Leigh Physician |
Thompson Diagnostic Clinic for FAS 871 Thompson Drive South Thompson, Manitoba R8N 0C8 |
| WOODWORTH, Carol Speech/Language Pathologist |
Asante Centre for FAS 23000-116th Avenue Maple Ridge, British Columbia V2X 0T8 |
Appendix 3: Members of the NAC FASD Sub-Committee on Screening, Diagnosis and Training
Dr. Albert Chudley (Manitoba)
Dr. Julianne Conry (British Columbia)
Dr. Christine Loock (British Columbia)
Dr. Ted Rosales (Newfoundland)
Dr. Nicole Leblanc (New Brunswick)
Dr. Jocelynn Cook (Health Portfolio)
Appendix 4: List of Ranked Priorities
Priority and Rank
- Disseminate guidelines and progress to professional and
nonprofessional
groups. - Develop, establish, implement, evaluate and maintain standardized training.
- Create and get funding.
- Establish universal access to improve/maintain/sustain
expertise in all
provinces/ territories/First Nations/Inuit/Métis. - Establish data collection concurrent with dissemination of Guidelines.
- Link federal government Ministries/national organizations.
- Establish national leadership to coordinate access, regulation and partnership.
- Identify federal/national leadership and leaders in training (provincial).
- Consult with First Nations/Inuit/Métis on guidelines, aftercare and reporting.
- Ensure universal access to diagnosis.
- Build on existing resources (clinics, non-FASD, perinatal).
- Give presentations at appropriate conferences.
- Obtain Ministry endorsement.
- Create screening tools.
- Establish better linking among professional organizations.
- Develop or formalize a network among clinics.
- Review and evaluate in one to two years.
- Evaluate and monitor links to resources.
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