Resources for Hepatitis C and Injection

Drug Use - A Needs Assessment

Findings

The findings are divided into several sections. The first is a report of specific resources identified by the project researchers, who are information specialists. These are broken down into Web resources and actual items that have been identified and catalogued into the Web-based database.

The second section provides an analysis of gaps in the literature that were identified as a result of the searching done by the information specialists.

The third section is a discussion of what types of resources those interviewed reported using. Some specific items were mentioned, but the interviews resulted in a more general discussion of types of resources and key sources.

The fourth section describes information gaps as identified by respondents.

(1) Search results: Resources

Specific titles

A total of 245 items have been identified through this and the other contract projects on hepatitis C and IDU. These have been catalogued into a database, using DB/TextWorks. The records have been output to a Web-searchable database, currently available on the CCSA Web site at http://www.ccsa.ca/Eng/Pages/Home.aspx.

This database can be searched by author, title, publisher, subject or year published. It is also searchable through a simple natural language query that searches across all fields in the record.

The majority of items in the database were published articles (165 items). There are also a number of conference proceedings and reports. Most of the items are published in English (231). A few are bilingual or published in French.

A print bibliography from this database is provided in Appendix A.

Databases

Databases providing the best coverage of the hepatitis C and Injection Drug Use literature are:

MEDLINE
http://igm.nlm.nih.gov/
Bibliographic citations to the biomedical literature. Produced by the United States National Library of Medicine.

AIDSLINE
http://igm.nlm.nih.gov/
Bibliographic citations to the AIDS literature and related topics. Produced by the United States National Library of Medicine.

IDA (Information about Drugs and Alcohol)
http://www.health.org/DBarea/index.htm
Bibliographic citations to alcohol and substance abuse prevention and sociological issues. Produced by the United States Substance Abuse and Mental Health Services Administration.

Databases providing limited coverage of the hepatitis C and Injection Drug Use literature include:

ETOH (Alcohol and Alcohol Problems Science Database)
http://www.health.org/DBarea/index.htm
Bibliographic citations to all aspects of alcohol abuse and alcoholism. Produced by the United States National Institute on Alcohol Abuse and Alcoholism.

Toxibase
http://www.drogues.gouv.fr/fr/index.html
Bibliographic citations to the alcohol and drug scientific literature. Produced by nine information and documentation centres in France. Toxibase is bilingual (French-English).

Web sites: Hepatitis C and IDU

American Medical Students Association (U.S.)
http://www.amsa.org/
Needle exchange programs
Syringe exchange

Annals of Internal Medicine
Controlling Disease Transmission in Injection Drug Users
http://www.asim.org/journals/annals/16mar99/currdrug.htm
Harm reduction

British Liver Trust: Injecting Drug Use
http://www.britishlivertrust.org.uk/
This booklet provides up to date information about hepatitis C and injecting drug use. It has been designed for professionals working with users.
General information

Canadian Aboriginal AIDS Network
http://www.caan.ca/english.htm
A national coalition of aboriginal people and organizations that provide leadership, support and advocacy for aboriginal people living with and infected by HIV/AIDS.
Harm reduction; Advocacy; Support

Canadian Foundation for Drug Policy
http://www.cfdp.ca
The Canadian Foundation for Drug Policy (CFDP) is a non-profit organization founded in 1993 by several of Canada's leading specialists in drug policy.
Policy alternatives

Centre for Education and Information on Drugs and Alcohol (CEIDA) (Australia)
Hep C NSW Directory of Education Resources
http://www.ceida.net.au/hepC/index.htm
Hepatitis C NSW Directory of Education Resources is a quick and easy reference guide for accessing available resources on hepatitis C. It is designed for those in NSW working within a broad range of health related fields.
General information

Centre for Harm Reduction (Australia)
http://www.chr.asn.au/home
The Centre for Harm Reduction (CHR) is part of the Epidemiology and Social Research Unit (ESRU) of the Macfarlane Burnet Centre (MBC).
Harm reduction; Research

Chicago Recovery Alliance (U.S.)
http://www.anypositivechange.org/crainfo.html
The Chicago Recovery Alliance is an action organization for those interested in directly serving, supporting, educating, and advocating with others for reducing drug-related harms. Resources and information for injection drug users: safer injecting, syringe exchange, living with HIV.
Harm reduction; Syringe exchange; Support; Advocacy

eMJA: The Medical Journal of Australia
http://www.mja.com.au/
Search for hepatitis will produce a number of articles related to hepatitis C and IDU.
Research; Harm reduction; Prisons

Glitzy
http://www.glitzy.demon.co.uk/
Glitzy is an independent site supporting drug users activism and community based harm reduction in the UK and internationally. Includes International Drug Users Information Exchange. Viral protection campaign information.
Harm reduction; Support; Advocacy

Harm Reduction Coalition
http://www.harmreduction.org/hepatitisabc.html
The Harm Reduction Coalition (HRC) is committed to reducing drug-related harm among individuals and communities by initiating and promoting local, regional, and national harm reduction education, interventions, and community organizing.
Harm reduction; Support; Advocacy

Hepatitis C Council of NSW (Australia)
http://www.hepatitisc.org.au/
An independent community-based organization providing information, support and advocacy to people affected by hepatitis C in the state of NSW, Australia.
Research; Support; Advocacy; General information

Hepatitis Place
http://www.hepplace.com/
The Hepatitis Place is a privately-funded medical information resource center for health professionals and hepatitis patients.
Alcoholism; Research

HIV/AIDS and Hepatitis C in Prisons: The Facts
http://www.aidslaw.ca/EN/issues/prisons.htm Canadian HIV/AIDS Legal Network
Harm reduction; Syringe exchange; Prisons

HIV InSite (U.S.)
http://hivinsite.ucsf.edu/hiv?page=md-pgl-hcv
HIV InSite is a project of the University of California San Francisco (UCSF) Positive Health Program at San Francisco General Hospital Medical Center and the UCSF Center for AIDS Prevention Studies which are programs of the UCSF AIDS Research Institute.
Harm reduction; Syringe exchange; General information

International Association of Physicians in AIDS Care
http://www.thebody.com/iapac/hcv_hiv.html
Hepatitis C virus (HCV) and HIV co-infection (Journal of the IAPAC)
Research; Prisons

Journal of the American Medical Association HIV/AIDS Information Centre
Prevention of HIV/AIDS and Other Blood-Borne Diseases Among Injection Drug Users
http://www.ama-assn.org/special/infohome.htm
Syringe exchange; Legislative issues

Lindesmith Center Online Library (U.S.)
Fourteen Article Abstracts on Syringe and Needle Exchange
http://www.lindesmith.org/library/lipp14.cfm
Syringe exchange

Macfarlane Burnet Centre for Medical Research (Australia)
http://www.burnet.internationalhealth.edu.au/home
The main research interest of the Macfarlane Burnet Centre is viruses. The Centre's work ranges from basic laboratory research on viruses such as HIV and hepatitis, through to the design, evaluation and implementation of public health programs to prevent the spread of these viruses.
Research; Harm reduction

National Clearinghouse for Alcohol and Drug Information (U.S.)
Research briefs
http://www.health.org/res-brf/index.htm
Search the databases for hepatitis C information.
Harm reduction; Research; General information

National Drug Research Institute, Curtin University (Australia)
http://ndri.curtin.edu.au/
Preventing harmful drug use in Australia
Research; Harm reduction

National Institute on Drug Abuse (U.S.)
Heroin Snorters Risk Transition To Injection Drug Use And Infectious Disease
http://www.drugabuse.gov/NIDA_notes/
NNVol14N2/Heroin.html

New South Wales, Health: Hepatitis C (Australia)
http://www.health.nsw.gov.au/public-health/a-z/hepc.html
General information

Project Cork Resource Centre (U.S.)
Bibliography on Harm Reduction
http://www.state.vt.us/adap/harmred.htm
Harm reduction; Research

Safe Works AIDS Project (U.S.)
http://www.safeworks.org/
Safe injecting, vein care practices, safer piercing.
Harm reduction; Not specific to hepatitis C

Seattle and King County Public Health
Update on the Use of Bleach to Prevent Transmission of HIV and Hepatitis among Injection Drug Users
http://www.metrokc.gov/health/apu/infograms/bleach.htm
Harm reduction

Treatment Improvement Exchange (U.S.)
HIV/AIDS, TB and Infectious Diseases Cross-Training: The Alcohol and Other Drug Abuse Connection
http://www.treatment.org/Topics/infectious.html
The HIV/AIDS, TB and Infectious Diseases: The Alcohol and Other Drug Abuse Connection is a training initiative designed to accomplish system change by increasing the knowledge, awareness and skills among public health and substance abuse treatment providers.

Usage de drogues, sexualité, transmission du virus VIH, hépatites B et C et réduction des risques en prison à travers le monde
Institut de Veille Sanitaire, Réseau Nationale de Santé Publique (France)
http://www.rnsp-sante.fr/publications/drogues/index.html
Research; Prison; Harm reduction

Vancouver Native Health Society
Low Literacy Teaching Guides (Hepatitis C Information; HIV, Hep C and Prison (Men); HIV, Hep C and Prison (Women))
http://www.vnhs.net/
Low literacy; Prison; Harm reduction

Walter Cavalieri's home page
Some Service Considerations for Community Health Centres, Based on Harm Reduction Principles, in Response to the Needs of the Growing Number of Persons Who Use Drugs, Who Have Become or Are Becoming Infected with HIV and Hepatitis C
http://users.surfen.net/~walterc/harm_red.html
Harm reduction

Web sites: General Hepatitis C

American Liver Foundation
http://www.liverfoundation.org/

Canadian Hemophilia Society
http://www.hemophilia.ca/en/5.1.php

Canadian Liver Foundation
http://www.liver.ca/liver_disease/adult_liver_diseases/hepatitis_c.aspx

Centers for Disease Control and Prevention, National Center for Infectious Diseases
Hepatitis C
http://www.cdc.gov/ncidod/diseases/hepatitis/c/index.htm

Clinical Trials Listing Service
http://www.centerwatch.com/studies/cat79.htm

Focus: On Hepatitis C International
http://www.focusonhepc.com/index1.html
Support and advocacy for HCV+

Health Care Information Resources: Hepatitis Links
McMaster University
http://www-hsl.mcmaster.ca/tomflem/hepat.html
For patients, their families, friends and health care workers.

Hemophilia Ontario
Hepatitis C: An information booklet for people infected with hepatitis C virus and their families
http://www.hemophilia.on.ca/hepatitis/fbooklet96.htm

Hepatitis C
http://www.dalquen.eu/oldsite/hepace.htm
by Ingo d'Alquen

Hepatitis C Society of Canada
http://web.idirect.com/~hepc/

Hepatitis C United Resource Exchange
http://www.junction.net/hepcure/index.html

Hepatitis C: What Clinicians and Other Health Professionals Need to Know
http://www.cdc.gov/ncidod/diseases/hepatitis/spotlight.htm
An interactive Web-based training program.

Hep-C Alert!
http://www.hep-c-alert.org/index.htm

Hepatitis Central
http://www.hepatitis-central.com/

Hepatitis Foundation International
http://www.hepfi.org/

Hepatitis Information Network: HepNet
http://www.hepnet.com/hepc.html

HIV and Hepatitis.com
http://www.hivandhepatitis.com/index.html
The staff of HIV and Hepatitis.com is a group of individuals closely linked to the communities of people living with HIV, hepatitis B, and hepatitis C virus infection. Our common objective is to create a quality online publication that provides practical, reliable information about treatment and experimental vaccine options for these chronic conditions.

Medifind
http://www.medifind.com
Hepatitis C: a physician's guide to what's online. Requires login with medical #.

National Hepatitis C Coalition, Inc.
http://nationalhepatitis-c.org/

World Health Organization
Communicable Disease Surveillance and Response: Hepatitis
http://www.who.int/csr/disease/hepatitis/en/index.html
Links to epidemiological surveillance

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