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Details of Funded Projects

Table of Contents

Canadian Breast Cancer Initiative (CBCI)

Funded Projects for 2004 – 2008

 

Alliance des communautés culturelles pour légalité des femmes dans la santé et les services sociaux : Global Health of Women from Ethnocultural Communities : Training, Information and Navigation (Québec)
Lead/Recipient: The Alliance des communautés culturelles pour l'égalité dans la santé et les services sociaux (ACCÉSSS) promotes accessible and culturally appropriate social and health services to members of multicultural communities in all regions of Québec.
Partners: ACCÉSSS member organizations (there are over 70 members including: le Centre des femmes italiennes de Montréal; le Centre d'orientation paralégale et sociale pour immigrants (COPSI); le Centre d'encadrement pour jeunes filles immigrantes (CEJFI); le Carrefour; le Moutier de Longueuil; l'Association multiethnique pour l'intégration des personnes handicapées (AMEIPHQ); la Maison d'Haïti; le Centre d'intégration multi-services de l'Ouest de l'Ile de Pierrefonds; and l'Agence de développement des réseaux locaux des services de santé et des services sociaux de la région de Montréal; le Programme Québécois de Dépistage du Cancer du Sein – Montréal; le CÉGEP du Vieux-Montréal.
Funding: $94,640
Duration: October 23, 2007 – October 22, 2008
In brief: There were two objectives for this project: first, to inform health care professionals about women's health concerns and cultural barriers in health care in order to improve care; and, second, to sensitize women in multicultural communities about breast cancer while approaching other health issues such as menopause, osteoporosis, healthy eating, and healthy sex practices. The project created training materials; held training sessions to educate health professionals and the community at large; produced brochures targeted at immigrant women; and conducted events to increase cancer screening among immigrant women.

 

Alliance des communautés culturelles pour légalité des femmes dans la santé et les services sociaux : Global Health of Women from Ethnocultural Communities (Québec)
Lead/Recipient: The Alliance des communautés culturelles pour l'égalité dans la santé et les services sociaux (ACCÉSSS) promotes accessible and culturally appropriate social and health services to members of multicultural communities in all regions of Québec.
Partners: ACCÉSSS member organizations (over 70 members including: le Centre des femmes italiennes de Montréal; le Centre d'orientation paralégale et sociale pour immigrants (COPSI); le Centre d'encadrement pour jeunes filles immigrantes (CEJFI); le Carrefour; le Moutier de Longueuil; l'Association multiethnique pour l'intégration des personnes handicapées (AMEIPHQ); la Maison d'Haïti; le Centre d'intégration multi-services de l'Ouest de l'Ile de Pierrefonds; l'Agence de développement des réseaux locaux des services de santé et des services sociaux de la région de Montréal; le Programme Québécois de Dépistage du Cancer du Sein – Montréal; le CÉGEP du Vieux-Montréal.
Funding: $60,000
Duration: April 1, 2006 – March 31, 2007
In brief: This project developed a global health perspective for women, focussing on diverse populations, while reducing cancer death rates by increasing screening rates and expanding the knowledge base related to women's health issues. Project activities included: delivering interactive conferences; sharing workbooks on various health issues that affect women; and the development of workshops addressing sexuality, healthy eating, and breast cancer screening that were delivered in four languages and translated into three others.

 

Alliance for Breast Cancer Information and Support, BC & Yukon: Development and Implementation of a Comprehensive Five Year Strategic Plan for Breast Cancer in BC and the Yukon (British Columbia and Yukon)
Lead/Recipient: The Alliance for Breast Cancer Information and Support of BC and the Yukon is a member of a national group of networks that work to enhance capacity for action on breast cancer and women's health. The mandate of the Alliance is to increase the capacity of communities to improve access to information and support for persons living with breast cancer through the use of a collaborative networking structure.
Partners: BC Cancer Agency; Canadian Cancer Society BC & Yukon Division; Canadian Breast Cancer Foundation BC/Yukon Chapter; BC Women's Hospital and Health Centre; Canadian Breast Cancer Network; First Nations Breast Cancer Society; Life Quilt for Breast Cancer Society; Abreast In A Boat Society; Vancouver Hospital and Health Sciences; Regional Advisory Groups, a Territory Advisory Group and a Provincial/ Territory Advisory Committee; Community Health Representatives from 7 nations in BC and Yukon.
Funding: $164,450
Duration: February 2, 2005 – March 31, 2008
In brief: Increased capacity in specific under-served communities was achieved in this project through: an environmental scan to identify the communities; developing a website to serve young women with breast cancer (www.breastcancernowwhat.ca); the creation of a guide for the partners of those diagnosed with breast cancer (A Parallel Journey); a Breast Cancer Tool Kit for Aboriginal Health Care Providers; and an Orientation Workshop.

 

Breast Cancer Action Nova Scotia: Collaboration to Increase Capacity in the Nova Scotia Breast Cancer Community (Nova Scotia)
Lead/Recipient: Breast Cancer Action Nova Scotia is a member of a national group of networks that work to enhance capacity for action on breast cancer and women's health. The mandate of the organization is to voice the concerns and needs of people living with breast cancer through networking, support, education and research.
Partners: Cancer Care Nova Scotia; Cancer Patient Navigators partnerships; Canadian Breast Cancer Foundation – Atlantic Region; Canadian Cancer Society; IWK Breast Health Clinic; Lawtons Drugs; Nova Scotia Breast Screening Program; Service Canada.
Funding: $80,709
Duration: February 10, 2005 – September 30, 2008
In brief: Information gaps in educating the public about available resources and services were addressed in this project through: posters and postcards on the Pink Rose Information Kit; promoting resources with the Canadian Cancer Society; holding Public Breast Health events; partnering with the Nova Scotia Library System to increase distribution and awareness of its resources; updating and publishing a breast health resource directory; strengthening the Network; and collaborating on the Atlantic Canada Think Tank on Women's Cancers.

 

Canadian Breast Cancer Network: Networking Project 2004-2008 (National)
Lead/Recipient: The Canadian Breast Cancer Network (CBCN), a survivor-directed, national network of organizations and individuals that acts as link between all groups and individuals concerned about breast cancer. It works to promote education and awareness about breast cancer at the national level and represents the concerns of all Canadians affected by breast cancer and those at risk.
Partners: CBCN has over 225 partner and member groups. Key partner organizations include the Canadian Cancer Society; the Canadian Breast Cancer Foundation; the Breast Cancer Society of Canada; Provincial and Territorial breast cancer networks.
Funding: $1,120,312
Duration: January 31, 2005 – March 31, 2012
In brief: The objective of this project is to strengthen the Network's capacity to represent diverse communities and to serve as a resource for those affected by breast cancer. The project has three areas of focus: young women with breast cancer through the development of web-based materials and an interactive community forum space; partners and member groups through the provision of education and skills development webcasts/teleconferences on a variety of topics and issues including lymphedema, nutrition, palliative care, and new breast cancer treatments; and the development of support resources for rural and remote communities. The resources resulting from this project include a Sexuality and Intimacy Workshop Module, A Handbook Resource Guide for Rural and Remote Populations, a literature review and partnership models, and Network News and Outreach Publications newsletters.

 

Canadian Cancer Society, PEI Division: PEI Breast Cancer Information Partnership (Prince Edward Island)
Lead/Recipient: The PEI Breast Cancer Information Partnership is a member of a national group of networks that work to enhance capacity for action on breast cancer and women's health. The organization ensures that easily accessible, reliable and up-to-date information about early detection, treatment and follow-up care of breast cancer is available to those affected by breast cancer in Prince Edward Island.
Partners: PEI Medical Society; Queen Elizabeth Hospital Pathology Laboratory; Women's Institute; Queen Elizabeth Oncology Unit; Community Capacity-Building committees across the Atlantic Region.
Funding: $31,756
Duration: April 1, 2005 – March 31, 2008
In brief: This project enhanced the information and support available to women diagnosed with breast cancer in PEI through: monthly network meetings; collaboration on regional initiatives; the distribution of the previously developed Sunflower Seeds of Knowledge Breast Cancer Information Kits and the Reach-to-Recovery Kits; the development and distribution of an Advanced Breast Cancer Kit through the Cancer Treatment Centre; presentations on breast cancer to rural communities; and the development of a new website (www.peibcip.ca).

 

CancerCare Manitoba – Breast Cancer Centre of Hope, Care of the Manitoba Breast and Women's Cancer Network: Next Steps: Cancer Education Throughout The Cancer Journey (Manitoba)
Lead/Recipient: The Manitoba Breast and Women's Cancer Network is a member of a national group of networks that work to enhance capacity for action on breast cancer and women's health. The goal of the organization is to improve the dissemination of information and support along the continuum of cancer services within Winnipeg.
Partners: Manitoba Breast Screening Program; Manitoba Cervical Screening Program; Manitoba Colorectal Screening Program; Breast Cancer Centre of Hope; Sexuality Education Resource Centre (SERC); Canadian Cancer Society; Artificial Intelligence; GlaxoSmithKline; Merck Frosst; CancerCare Manitoba Foundation.
Funding: $67,282
Duration: September 24, 2007 – September 23, 2008
In brief: The focus of this project was to improve the dissemination of information to immigrant and Aboriginal women by addressing gaps in translated information for primary cancer prevention and treatment. Through the project, a DVD on cancer prevention was produced with the involvement of immigrant and Aboriginal community contacts; these contacts participated in the focus group filming, script critique, filming, workshop, video launch, and dissemination into the community to ensure cultural sensitivity and effectiveness. The videos are available with subtitles in English, French, Chinese, Cree, Hindi, Ojibwe, Panjabi, Portuguese, Tagalog, Spanish and Vietnamese.

 

CancerCare Manitoba - Manitoba Breast Screening Program: Multicultural Outreach - Cancer Education and Screening Project (Manitoba)
Lead/Recipient: CancerCare Manitoba works to prevent cancer and support early detection of cancer.
Partners: CancerCare Manitoba Foundation – Breast Cancer Centre of Hope; Manitoba Breast Screening Program; Manitoba Cervical Cancer Screening Program; Manitoba Colorectal Screening Program; Sexuality Education Resource Centre Manitoba; the Canadian Cancer Society.
Funding: $42,195
Duration: April 1, 2005 – March 31, 2007
In brief: The goal of this project was to improve the low breast and cervical cancer screening rates among women from five immigrant communities in Manitoba by increasing the number of non-English speaking women who regularly attend breast screening clinics and have Pap tests. Reducing cultural barriers and increasing accessibility involved: presentations and workshops on multiculturalism for breast and cervical cancer screening providers; training facilitators from each of the communities to deliver information on breast and cervical cancer; developing culturally sensitive pamphlets and videos to increase awareness in multicultural communities; and organizing group trips to screening centres for Pap tests and mammograms.

 

Canadian Cancer Society – Saskatchewan Division (on behalf of the Saskatchewan Breast Cancer Network): Connecting the Breast Cancer Community: A Thinking, Learning and Caring Collaboration (Saskatchewan)
Lead/Recipient: The Canadian Cancer Society is a national community-based organization of volunteers whose mission is the eradication of cancer and the enhancement of the quality of life of people living with cancer. The Saskatchewan Breast Cancer Network (SBCN) was formed to enhance capacity for action on breast cancer and women's health.
Partners: Saskatchewan Cancer Agency; Breast Cancer Action Saskatchewan; HOPE Cancer Help Centre; High Risk Breast Assessment Clinic – Advisory Committee; Health Quality Council Saskatoon Health Region; Saskatchewan Cancer Advisory Network; Saskatchewan Mid-Life Centre; Tribal Councils; First Nations Communities; Aboriginal elders; Aboriginal cancer survivors.
Funding: $61,185
Duration: September 13, 2007 – September 12, 2008
In brief: This project improved awareness and access to education and information through: the development of Breast Self Examination messaging; education presentations on early detection and screening for breast and cervical cancer for Aboriginal women; Aboriginal-specific activities such as a workshop and 'Talking Circle;' and the sponsoring of nine Aboriginal women to attend the Canadian Cancer Society - Living with Cancer Conference. The project also created a 'photovoice' visual art display and conducted survivorship activities included holding workshops, and beginning work on the priority of lymphedema.

 

New Brunswick Breast Cancer Information Partnership Inc.: Building on our Strengths (New Brunswick)
Lead/Recipient: The New Brunswick Breast Cancer Information Partnership is a member of a national group of networks that work to enhance capacity for action on breast cancer and women's health by facilitating access to appropriate information to support those who have been diagnosed with breast cancer making informed decisions.
Partners: The Canadian Cancer Society; New Brunswick Breast Cancer Network; Ovarian Cancer Canada; Canadian Breast Cancer Foundation; government breast screening/breast health programs; patient navigators; and survivors of breast and ovarian cancer
Funding: $88,111
Duration: February 10, 2005 – September 30, 2008
In brief: This project enhanced personal health practices and coping skills among those affected by breast cancer through: the distribution of educational resources; jointly organized educational events; participation in breast awareness events targeting youth; working with the nine Aboriginal bands in New Brunswick to inform the development of culturally sensitive resources; hosting the Atlantic Think Tank on Women's Cancers; and beginning a formal transition into a women's cancers network to address breast, cervical, ovarian and uterine cancers.

 

Newfoundland and Labrador Lupin Partnership: Community Capacity Building Revitalization Project for Newfoundland and Labrador (Newfoundland and Labrador)
Lead/Recipient: The Lupin Partnership of Newfoundland and Labrador (formerly the Community Capacity Building Partnership of Newfoundland and Labrador) is a province-wide network of collaborating health organizations that works to enhance capacity for action on breast cancer and women's health.
Partners: Breast Screening Program for Newfoundland & Labrador; Canadian Cancer Society; Canadian Breast Cancer Foundation; Canadian Breast Cancer Network; Cervical Screening Initiatives Program of Newfoundland and Labrador; Métis Nation; Nunatsiavut Government; Primary Health Care Teams; Provincial Cancer Care Program; Regional Health Authorities; Women's Institutes and Status of Women; Women living with breast cancer and other cancers; Young Adults Cancer Canada.
Funding: $46,600
Duration: May 9, 2007 – September 4, 2008
In brief: This project reinstated an active breast cancer partnership in the Newfoundland and Labrador region by: meeting to develop sustainable partnerships to addresses women's cancers in Newfoundland and Labrador; recruiting new members for areas under-served by the Partnership; and holding an Atlantic Canada Consultation meeting to allow participants to collaborate on region-specific issues related to women's cancers.

 

NWT Breast Health/Breast Cancer Action Group: Breast Cancer in the Northwest Territories 2004-2008: A Foundation for the Future (Northwest Territories)
Lead/Recipient: The NWT Breast Health/Breast Cancer Action Group is a member of a national group of networks that work to enhance capacity for action on breast cancer and women's health. The Group improves breast health, increases accurate breast cancer information resources, services and supports available to women of the NWT with breast cancer and their families.
Partners: Government of the NWT's Breast Health Advisory Committee; Stanton Territorial Hospital; Run For Our Lives Organizing Committee/Stanton Hospital Foundation Breast Health Committee; health care providers; Yellowknife Health and Social Services Authority.
Funding: $84,400
Duration: November 2, 2005 – September 30, 2008
In brief: This project improved community access to information on available resources, services and support related to breast cancer through: the hosting of four successful survivor retreats with successive increases in Aboriginal and remote community participation; a survivor needs assessment; and the development of a web site and plain language breast health awareness materials and resources for newly diagnosed breast cancer patients that were distributed throughout various communities.

 

Odette Cancer Centre (Formerly Sunnybrook Regional Cancer Centre): Enhancing Access to Psychological Care, Information and Support for Cancer Patients and Family Members (Ontario)
Lead/Recipient: The Odette Cancer Centre is the cancer program of the Sunnybrook and Women's Health Science Centre which provides specialized care across the spectrum of cancer and collaborates with breast cancer, ovarian cancer, lung cancer and cancer research organizations as well as the Canadian Cancer Society and the Canadian Cancer Advocacy Network to provide effective care and support.
Partners: BC Cancer Agency; Cancer Care Nova Scotia; CancerCare Manitoba; Canadian Cancer Society – Ontario Division; Ovarian Cancer Canada; Ontario Breast Cancer Exchange Partnership; Ontario Breast Cancer Community Research Initiative; Prostrate Cancer Canada; Thunder Bay Breast Health Coalition.
Funding: $165,000
Duration: March 1, 2006 – February 28, 2008
In brief: This project enhanced the supportive care of cancer patients and their family members by increasing access to psychosocial care, information and support. Project activities included: implementing and evaluating professionally-led online support groups; implementing and evaluating peer-led support groups; producing and evaluating a manual for patient navigation programs; and producing and testing a learning kit about psychosocial care, information provision and support for use by health care professionals and volunteers. Teleconferences and webinars reduced the gap in psychosocial care by educating health professionals and volunteers.

 

Ontario Breast Cancer Information Exchange Partnership Breast Cancer Information and Support - Preferences to Guide Service Development (Ontario)
Lead/Recipient: The Ontario Breast Cancer Exchange Partnership is a member of a national group of networks that work to enhance capacity for action on breast cancer and women's health. The mandate of the Ontario Breast Cancer Information Exchange Partnership is to ensure that information about breast cancer is readily available to all Ontarians.
Partners: Canadian Cancer Society – Ontario Division; Willow Breast Cancer Support Canada; Ovarian Cancer Canada; and Thunder Bay Breast Health Coalition.
Funding: $164,500
Duration: February 2, 2005 – March 31, 2008
In brief: This project undertook research on the use of technology as a tool to address the information needs of women in Ontario affected by breast cancer. Activities for this project included: a needs assessment to identify gaps in information; the development of a website; and the piloting of peer-led phone and online support groups. The project found that technology can provide support and connections to those survivors who are isolated or in remote locations and the website was rated as highly relevant to the cancer survivor population.

 

Qulliit: Nunavut Status of Women Council: Community Awareness and Prevention: Mobilizing Nunavut Communities Around Breast Health, Support, and Cancer Education (Nunavut)
Lead/Recipient: The Qulliit: Nunavut Status of Women Council develops public awareness of issues affecting women by promoting change in attitudes, reviewing policies and legislation, and providing appropriate assistance to the organizations and groups that promote the equality of women.
Partners: Government of Nunavut – Department of Education; Government of Nunavut Health and Social Services; Canadian Breast Cancer Network; Qikiqtani Inuit Association; Canadian Cancer Society; Royal Purple of Canada; Ottawa Health Services Network Inc.
Funding: $48,700
Duration: September 1, 2007 – August 30, 2008
In brief: The objective of this project was to strengthen capacity for the provision of information and support of those in Nunavut affected by breast cancer through: establishing community links and new partnerships; giving presentations at the National Strategy on Cancer Care Forum; supporting, strengthening and maintaining Nunavut breast cancer advocacy and survivors group; and raising awareness of cancer related issues through workshops, partnerships and education among Inuit in Nunavut. The Council also expanded its cancer information base around breast cancer to include other cancers that affect Nunavummiut women, such as lung cancer and cervical cancer.

 

Qulliit: Nunavut Status of Women Council: Cancer in Nunavut: Community Outreach: A Community-Based Support System (Nunavut)
Lead/Recipient: The Qulliit: Nunavut Status of Women Council develops public awareness of issues affecting women by promoting change in attitudes, reviewing policies and legislation, and providing appropriate assistance to the organizations and groups that promote the equality of women.
Partners: Government of Nunavut – Department of Education; Government of Nunavut Health and Social Services; Canadian Breast Cancer Network; Qikiqtani Inuit Association; Canadian Cancer Society; Royal Purple of Canada; Ottawa Health Services Network Inc.
Funding: $30,000
Duration: April 1, 2006 – March 31, 2007
In brief: The health and well-being of women in Nunavut was improved by this project which: developed resources and workshop materials on breast cancer prevention and early detection; translated information to increase accessibility; promoted and expanded the website to include women's health issues; continued the dialogue with educators and health representatives regarding the Breast Health Education Kit; strengthened a Nunavut breast cancer advocacy and survivors group; and increased the human resource potential in Nunavut among Inuit through educational workshops and training.

 

Qulliit: Nunavut Status of Women Council: Cancer in Nunavut: Strengthening a Community-Based Support Network (Nunavut)
Lead/Recipient: The Qulliit: Nunavut Status of Women Council develops public awareness of issues affecting women by promoting change in attitudes, reviewing policies and legislation, and providing appropriate assistance to the organizations and groups that promote the equality of women.
Partners: Government of Nunavut – Department of Education; Government of Nunavut - Department of Culture, Language, Elders and Youth; Department of Health and Social services; Canadian Breast Cancer Network; The Royal Purple Women's Lodge Iqualuit
Funding: $30,000
Duration: January 26, 2005 – January 21, 2006
In brief: In this project, work continued on building an information network on breast cancer, supporting breast cancer survivors, informing community members, and expanding the breast cancer information base to include other cancers (e.g. lung and cervical) that affect Nunavummiut women. The project activities included: consulting with educators/health professionals on the use of the Breast Health Education Kit; creating an expanded user guide for the breast health kit; redeveloping a breast cancer survivor Advocacy/Action Group to assist survivors; training community health workers/survivors to utilize a breast health model effectively; and creating a breast cancer website.

 

Funded Projects for 2008 – 2010

 

Alliance des communautés culturelles pour l'égalité dans la santé et services sociaux (ACCÉSSS): Working to Control Cancer: A Global Health Approach for Women (raising awareness in ethnocultural communities, training of healthcare workers and volunteers) (Québec)
Lead/Recipient: The Alliance des communautés culturelles pour l'égalité dans la santé et les services sociaux (ACCÉSSS) promotes accessible and culturally appropriate social and health services to members of multicultural communities in all regions of Québec.
Partners: Over 70 member organizations at the provincial, municipal and community levels, as well as the health and social services sectors.
Funding: $147,423
Duration: July 23, 2009 – August 31, 2010
In brief: This project consisted of the development of breast and gynaecologic cancer educational sessions for women and training for health care providers to address the specific needs of immigrant women settling in Quebec from more than thirty culturally diverse communities. The project involved information and awareness activities, training sessions for volunteers and health workers, and the development of a support and care network for women of multi-cultural communities facing a diagnosis of cancer.

 

Alliance for Breast Cancer Information and Support, BC and Yukon: "After 10 Years - A New Direction: Sharing Best Practices and Inclusion of Women's Reproductive Cancers" (British Columbia and Yukon)
Lead/Recipient: The Alliance for Breast Cancer Information and Support of BC & Yukon is a member of a national group of networks that work to enhance capacity for action on breast cancer and women's health. The Alliance increases the capacity of communities to improve access to information and support for persons living with breast cancer through the use of a collaborative networking structure.
Partners: BC Cancer Agency and BC Cancer Foundation; Canadian Breast Cancer Foundation - BC/Yukon Chapter; Canadian Breast Cancer Network; Canadian Cancer Society - BC & Yukon Division; Ovarian Cancer Canada; many survivor-based groups.
Funding: $75,000
Duration: May 28, 2009 – June 31, 2010
In brief: A qualitative review of best practices and network building was conducted to determine if oncology resources were meeting the needs of under-served communities, including Aboriginal women and young women, with activities that included a one-day planning workshop in Vancouver. The project resulted in the establishment of an expanded Alliance working to meet identified needs (gynaecologic, Aboriginal, literacy, cultural).

 

Breast Cancer Action Nova Scotia: Adolescent Breast Health Initiative for Nova Scotia (Nova Scotia)
Lead/Recipient: Breast Cancer Action Nova Scotia is a member of a national group of networks that work to enhance capacity for action on breast cancer and women's health. The mandate of the Nova Scotia organization is to voice the concerns and needs of people living with breast cancer through networking, support, education and research.
Partners: Cancer Care Nova Scotia; CancerCare Manitoba; Canadian Cancer Society; Canadian Breast Cancer Foundation – Atlantic Region; Confederacy of Mainland Mi'kmaq; IWK Breast Health Clinic; Nova Scotia Department of Education; Nova Scotia Advisory Counsel on the Status of Women; PrideHealth; Public Health Services of Nova Scotia; Union of Nova Scotia Indians; Réseau Santé Nouvelle-Écosse; Parkview Education Centre; Corporate Research Associates.
Funding: $65,475
Duration: June 11, 2009 – March 31, 2010
In brief: This project was a first step in advancing breast health as a key educational component in the high-school health curriculum. The project encouraged risk-minimizing lifestyle choices among young women (aged 16 -18 years of age) by increasing awareness of modifiable risk factors (e.g. obesity and smoking) that may lead to the development of breast cancer. Materials and resources to improve knowledge of breast health and help reduce the incidence of breast cancer were developed. This pilot project provided the organization the opportunity to develop best practices and lessons learned that will be used to further the goal of building this knowledge into the health curriculum in this province and others.

 

Breast Screening Program for Newfoundland and Labrador: Peer Navigation for Women's Cancers in Newfoundland and Labrador (Newfoundland and Labrador)
Lead/Recipient: The Newfoundland and Labrador Lupin Partnership is a province-wide, volunteer network of stakeholders who collaborate to enhance capacity for action on breast cancer and women's health.
Partners: Canadian Breast Cancer Network; Ovarian Cancer Canada; various cancer agencies and health authorities; Women's Institutes; the Canadian Cancer Society; the Seniors Resource Centre.
Funding: $116,906
Duration: May 21, 2009 – September 30, 2010
In brief: This project was an educational initiative to develop training materials and provide training opportunities to community volunteers who offer peer support services to women diagnosed with women's cancers. Project activities included the development of a community resources manual, a trainer's manual, and the recruitment of volunteers in rural communities that could benefit from peer navigation services.

 

Canadian Breast Cancer Network: Breast and Women's Cancer: Increasing Capacity through Sharing Knowledge, Skills and Best Practices (National)
Lead/Recipient: The Canadian Breast Cancer Network (CBCN), a survivor-directed, national network of organizations and individuals that acts as link between all groups and individuals concerned about breast cancer. The Network works to promote education and awareness about breast cancer at the national level and represents the concerns of all Canadians affected by breast cancer and those at risk.
Partners: Provincial and Territorial Breast Cancer Networks and organizations; Ovarian Cancer Canada; Hereditary Breast and Ovarian Cancer Society of Alberta.
Funding: $200,000
Duration: July 20, 2009 – March 31, 2010
In brief: The project supported a knowledge exchange mechanism for breast and women's cancers organizations, particularly concerning issues related to risk factors and conditions for cervical, breast, ovarian and uterine cancers. Regional meetings, webcasts and teleconferences were held with breast and women's cancer organizations to share best practices.

 

Canadian Cancer Society – Saskatchewan Division (on behalf of the Saskatchewan Breast Cancer Network): Connecting the Breast Cancer Community: A Thinking, Learning and Caring Collaboration (Saskatchewan)
Lead/Recipient: The Canadian Cancer Society is a national community-based organization of volunteers whose mission is the eradication of cancer and the enhancement of the quality of life of people living with cancer. The Saskatchewan Breast Cancer Network (SBCN) was formed to enhance capacity for action on breast cancer and women's health.
Partners: Saskatchewan Cancer Agency; Health Quality Council; Breast Cancer Action Saskatchewan; HOPE Cancer Help Centre; Saskatoon Health Region; Les and Irene Dubé Centre of Care Saskatoon.
Funding: $73,052
Duration: June 3, 2009 – March 31, 2010
In brief: This project increased cancer survivors' awareness and access to education and information promoting a healthy lifestyle. The target populations included senior, young, and Aboriginal breast cancer survivors representing urban and rural demographics in Saskatchewan. The activities of the project included: think tanks; resource development; community education events; and continued relationship building among breast cancer stakeholders

 

New Brunswick Breast Cancer Information Partnership (NBBCIP) Inc.: An integration Model of Women's Cancers into the NBBCIP Inc. Within a Bilingual Framework (New Brunswick)
Lead/Recipient: The New Brunswick Breast Cancer Information Partnership is a member of a national group of networks that work to enhance capacity for action on breast cancer and women's health by facilitating access to appropriate information to support those who have been diagnosed with breast cancer making informed decisions.
Partners: Regional Health Authorities; New Brunswick Breast and Cervical Screening Programs; Ovarian Cancer Canada; Female Cancer Survivors; Provincial and Atlantic organizations with interest in women's health.
Funding: $95,550
Duration: May 12, 2009 – September 30, 2010
In brief: This project extended the work of the New Brunswick Breast Cancer Information Partnership (NBBCIP) to all women's cancers: breast, cervical, ovarian, and uterine. Project activities included: the development of a communication plan to increase awareness of the partnership; holding bilingual strategic planning meetings and education sessions; the development of gynaecological information kits; and the creation of a model for network expansion.

 

NWT Breast Health/ Breast Cancer Action Group: Increasing Understanding of Breast Health, Breast Cancer Risk Factors and Early Detection, in Northwest Territories Aboriginal Communities (Northwest Territories)
Lead/Recipient: The NWT Breast Health/Breast Cancer Action Group is a member of a national group of networks that work to enhance capacity for action on breast cancer and women's health. The Group improves breast health, increases accurate breast cancer information resources, services and supports available to women of the NWT with breast cancer and their families.
Partners: Stanton Territorial Hospital Breast Screening Program; Regional Health and Social Service Authorities; Community Health Representatives; Public Health and Health Promotion Staff; NWT Breast Cancer Patient Navigator; Aboriginal Breast Cancer survivors and women's organizations.
Funding: $155,680
Duration: May 21, 2009 - March 31, 2010
In brief: The project produced culturally appropriate workshops and materials for NWT communities to increase knowledge on breast health, its risk factors, risk reduction, and early detection methods. The information that was produced included: workshop materials; a video; and a facilitators' guide as part of a workshop kit that has been translated into the nine Aboriginal languages of the NWT.

 

Ontario Breast Cancer Exchange Partnership: Peer Navigation Program for Chinese-Speaking Breast Cancer Patients (Ontario)
Lead/Recipient: The Ontario Breast Cancer Exchange Partnership is a member of a national group of networks that work to enhance capacity for action on breast cancer and women's health. The mandate of the Ontario Breast Cancer Information Exchange Partnership is to ensure that information about breast cancer is readily available to all Ontarians.
Partners: Odette Cancer Centre; the Canadian Cancer Society - Ontario Division; the Cancer Journey Advisory Group of the Canadian Partnership Against Cancer; the BC Cancer Agency; the South Riverdale Community Health Centre.
Funding: $73,000
Duration: March 2, 2009 – March 31, 2010
In brief: This project developed and piloted a peer-led navigation program for Chinese-speaking breast cancer patients at the point of diagnosis through the early stages of treatment. Peer navigation training materials were developed and the program was implemented.

 

Funded Projects for 2010 – 2012

 

BC Cancer Foundation c/o BC/Yukon Women's Cancer Information and Support Alliance: Moving Forward: New Beginnings with Information and Support in Breast and Gynaecologic Cancers (British Columbia and Yukon)
Lead/Recipient: The BC/Yukon Women's Cancer Information and Support Alliance is a newly-formed network expanded from the previous Alliance for Breast Cancer Information and Support to include other women's cancers. The organization represents a means to link oncology resources to women with cancer to assist them through their cancer journey.
Partners: BC Cancer Foundation; Ovarian Cancer Canada; Canadian Cancer Society - BC/Yukon Division; Screening Mammography Programs of both BC and Yukon; the BC Association of Aboriginal Friendship Centres; the Cervical Cancer Screening Program; and the Gynecological Tumour Group of the BC Cancer Agency.
Funding: $162,180
Duration: October 5, 2010 – September 30, 2012
In brief: This project raises awareness of screening and early detection for breast and gynaecologic cancers among rural, remote and Aboriginal populations in BC and the Yukon through the development of a display and speaker series to be rotated through the province and territory as a tool for engaging Aboriginal populations in dialogue on issues related to healthy living and the importance of screening. The project also explores the best ways to address the needs of underserved populations due to age, ethnicity, or geographic remoteness through the establishment of various working groups.

 

Breast Cancer Action Nova Scotia: Nova Scotia Adolescent Breast Health Resource and Partnership Building (Nova Scotia)
Lead/Recipient: Breast Cancer Action Nova Scotia is a member of a national group of networks that work to enhance capacity for action on breast cancer and women's health. The mandate of the Nova Scotia organization is to voice the concerns and needs of people living with breast cancer through networking, support, education and research.
Partners: Department of Education, youth health centres; the Canadian Breast Cancer Foundation - Atlantic Region; the Canadian Cancer Society - Nova Scotia Division; le Réseau Santé Nouvelle-Écosse; Cancer Care Nova Scotia; Manitoba Breast and Women's Cancer Network.
Funding: $207,166
Duration: October 21, 2010 - March 31, 2012
In brief: This project increases awareness among teenage girls about breast health and breast disease within the nine Nova Scotia school districts by: refining the organization's recently piloted educational resource for adolescent girls about breast health and healthy lifestyles in preparation for a province-wide distribution; and by continuing to build partnerships with key stakeholders and decision-makers in health, education and youth outreach sectors.

 

Canadian Breast Cancer Network (CBCN): National Networking Project 2010-2012 (National)
Lead/Recipient: The Canadian Breast Cancer Network (CBCN) is a survivor-directed, national network of organizations and individuals that acts as a link between all groups and individuals concerned about breast cancer. The Network works to promote education and awareness about breast cancer at the national level and represents the concerns of all Canadians affected by breast cancer and those at risk.
Partners: Provincial and territorial breast cancer networks; national breast cancer and cancer organizations; local action groups from across the country and groups from various sectors representing underserved populations. CBCN also consults with the Canadian Cancer Society; Ovarian Cancer Canada; the Hereditary Breast and Ovarian Cancer Society of Alberta; the Atlantic Centre for Excellence for Women's Health; Rethink Breast Cancer; and the Canadian Breast Cancer Foundation.
Funding: $600,000
Duration: April 1, 2010 March 31, 2012
In brief: This project is strengthening the CBCN's ability to serve the breast cancer community including rural, remote and underserved populations and young women living with breast cancer by: promoting education and awareness about breast cancer at the national level; developing linkages between groups and individuals concerned about breast cancer; and implementing strategies to improve the health and well-being of breast cancer survivors.

 

Canadian Cancer Society - PEI Division: Setting the Stage for the Future: Understanding the Information and Support Needs of Women with Cancer in PEI (Prince Edward Island)
Lead/Recipient: The Canadian Cancer Society (CCS) - PEI Division is a leader in cancer control, working with volunteers and grassroots organizations across the province to actively prevent, cure, or manage cancer. The CCS - PEI Division focuses on screening and prevention including working with communities and professionals to enhance their role in breast cancer prevention and detection.
Partners: PEI Breast Cancer Information Partnership; Government of PEI's Department of Health and Wellness; PEI Women's Network.
Funding: $30,000
Duration: October 5, 2010 - September 30, 2011
In brief: This project enhances coordination of cancer prevention and control efforts across the province of PEI, and moves towards improving the availability of information and support to those with breast and other women's cancers. The work is being done through a needs assessment on the current service and information needs of women with cancer, partner groups, and public health professionals.

 

New Brunswick Breast and Women's Cancer Partnership, Inc.: Integration of Breast and Women's Cancers: Implementing a Bilingual Model Across New Brunswick Communities (New Brunswick)
Lead/Recipient: The New Brunswick Breast and Women's Cancer Partnership is a bilingual Partnership that works to enhance the quality of life of women with breast and reproductive cancers through the provision of accessible information and support as required through the cancer journey. The Partnership is also a member of a national group of networks that work to enhance capacity for action on breast cancer and women's health
Partners: The Canadian Cancer Society; New Brunswick Division; the Ovarian Cancer Canada Atlantic Regional Office; cancer survivors; and health professionals from the provincial cervical and breast screening programs.
Funding: $173,770
Duration: Oct 21, 2010 – September 30, 2012
In brief: This project will improve community-based support and resources for women diagnosed with breast and female cancers in New-Brunswick (particularly for under-served groups such as women living in rural and French-speaking communities). This will be done through public education sessions to raise awareness of resources and services, and provide tools to train community workers to support women with cancer.

 

NWT Breast Health/Breast Cancer Action Group: Psycho-social Support for NWT Breast Cancer Patients (Northwest Territories)
Lead/Recipient: The NWT Breast Health/Breast Cancer Action Group is a member of a national group of networks that work to enhance capacity for action on breast cancer and women's health. The Group improves breast health, increases accurate breast cancer information resources, services and supports available to women of the NWT with breast cancer and their families.
Partners: Stanton Territorial Hospital; regional health and social services authorities; community health centres; breast cancer survivors; community advocates.
Funding: $174,345
Duration: October 12, 2010 – September 30, 2012
In brief: This project is developing and piloting a "Healing Through Art" support program for NWT breast cancer patients who are undergoing diagnosis, treatment and follow-up. The project involves breast health workshops that are being held in at least five NWT communities.

 

Ontario Breast Cancer Exchange Partnership: Psychological Distress Screening in the Community for Breast Cancer Survivors (Ontario)
Lead/Recipient: The Ontario Breast Cancer Exchange Partnership is a coalition of provincial organizations that work together to improve the dissemination of credible breast health information and increase support for women living with breast cancer and their families. The Partnership strives for person-centred care by addressing the social, psychological, practical, and spiritual needs of those it supports.
Partners: The Cancer Journey Advisory Group of the Canadian Partnership Against Cancer; Rethink Breast Cancer; Willow Breast Cancer Support Canada and the Odette Cancer Centre; Gilda's Club Toronto; the Wellspring Cancer Support Foundation; the Canadian Cancer Society - Toronto Region.
Funding: $103,800
Duration: October 19, 2010 - March 31, 2012
In brief: The social and mental health issues related to cancer diagnosis and treatment are the focus of this project. The work involves the development of a community-based distress screening program for breast cancer patients and the identification of potential interventions and referrals that could support women who are identified as distressed. The distress program is based on recent work completed by the Cancer Journey Advisory Group Screening for Distress Working Group.

 

Pulaarvik Kablu Friendship Centre: Cancer in Nunavut: Strengthening a Community-Based Support Network (Nunavut)
Lead/Recipient: The Pulaarvik Kablu Friendship Centre is the only friendship centre in Nunavut. Located in Rankin Inlet on the west coast of Hudson Bay, the organization offers thirteen to fifteen programs that benefit the residents of Rankin Inlet and the Kivalliq Region. One of its programs is the Nunavut Cancer Network the goal of which is to work with Nunavut cancer survivors, other organizations, individuals, families and communities to increase cancer awareness and access to information and support regarding cancer in our territory.
Partners: Government of Nunavut Education, Health, and Social Services; Qikiqtani Inuit Association; Kivalliq Inuit Association; Kitikmeot Inuit Association; the Canadian Breast Cancer Network; the Canadian Cancer Society.
Funding: $55,000
Duration: October 6, 2010 - September 30, 2012
In brief: Through this project, a Nunavut Cancer Center Network is being established to work with Nunavut breast cancer survivors, other organizations, families and communities to increase cancer awareness and access to information and support. Culturally appropriate resources are being developed on the prevention and early detection of breast cancer and other cancers such as lung and cervical cancer.

 

Healthy Living and Chronic Disease (HLCD) – List of Funded Projects for 2008 – 2012

Projects for Cancer Prevention, Information and Support

 

BC Cancer Agency: Delivering Cancer Survivorship Care to Rural and Remote Communities in Northern British Columbia (British Columbia)
Lead/Recipient: The BC Cancer Agency Cancer Rehabilitation and Sociobehavioural Research Centre's mandate is to facilitate improvements in the quality of life of cancer patients and their families through research activity that generates new knowledge which then translates into improvements in clinical practice.
Partners: BC Cancer Agency; Northern Health Authority; University of Northern British Columbia; University of British Columbia; health professional in the Northern Interior, North West and the North East health services district areas; community cancer clinics; cancer survivors; Aboriginal communities.
Funding: $213,054
Duration: November 15, 2010 – September 30, 2012
In brief: This project is developing a framework for survivor care planning and delivery with a focus on the needs of cancer survivors in rural, remote, and Aboriginal communities in the three health districts served by Northern Health. This framework is being developed through a needs assessment and focus groups with cancer survivors in Northern BC, as well as interviews with health care providers so as to determine critical elements of survivor care and appropriate delivery.

 

Canadian Cancer Society, PEI Division: Cancer Screening Awareness in PEI (Prince Edward Island)
Lead/Recipient: The Canadian Cancer Society is a national community-based organization of volunteers whose mission is the eradication of cancer and the enhancement of the quality of life of people living with cancer. The Canadian Cancer Society, PEI Division has identified cancer prevention and research as priorities and contributes to cancer prevention and control through collaborative partnerships.
Partners: PEI Breast Screening Program; PEI Cervical Screening Program; PEI Colorectal Screening Program; Provincial Diagnostics; Government of PEI's Department of Health (Chronic Disease Prevention Program); Medical Society of PEI; Community Representatives.
Funding: $300,000
Duration: June 3, 2009 – March 31, 2010
In brief: This project aimed to reduce incidence in cervical cancer and reduce mortality in breast, cervical and colorectal cancers by increasing participation rates in these three cancer screening programs. Adults 40 to 60 years of age were targeted. The work involved conducting surveys to determine knowledge gaps then implementing a campaign of messages and communications to encourage people to get screened.

 

Cancer Prevention Network Erie St. Clair: Your Health Matters. Understand Your Cancer Risk (Ontario)
Lead/Recipient: Cancer Prevention Network Erie St. Clair, a network of service providers in Southern Ontario.
Partners: Canadian Cancer Society; Cancer Care Ontario; Windsor Regional Hospital; Canada's Corporate Roundtable on Cancer Control; Windsor-Essex County Health Unit; Chatham-Kent Health Unit; Sarnia Lambton Health Unit; Barrie-Royal Victoria Hospital; Thunder Bay – Regional Health Sciences Centre; provincial cancer agencies; Multi-cultural Council Windsor-Essex; University of Windsor.
Funding: $266,051
Duration: April 1, 2009 – March 31, 2010
In brief: The Network developed a pilot evidence-based workplace health promotion campaign that included a personalized cancer risk assessment tool. The project informed working and retired adults about their personal cancer risk, cancer prevention strategies, and available breast, cervical and colorectal screening programs through workplace partnerships, e-learning sessions, and a pilot site. Many participants in the project have since indicated that they either planned on getting screened or went for screening. Since the pilot, other organizations and workplaces have expressed interest in implementing the program, and an ethno-cultural community coalition has been formed to implement the program in seven ethno-cultural communities.

 

South Riverdale Community Health Centre: Pan-Canadian Best and Promising Practices to Engage Seldom- or Never -Screened Women in Cancer Screening (Ontario)
Lead/Recipient: South Riverdale Community Health Centre (SRCHC) is a community-based organization that offers primary health care services and health promotion programs to a diverse community.
Partners: Marvelle Koffler Breast Centre at Mount Sinai Hospital and Toronto Public Health with involvement from many other organizations including several working at the community level.
Funding: $264,005
Duration: May 14, 2009 – September 30, 2010
In brief: This project developed a compendium of best and promising practices to encourage participation in screening for populations of women who are seldom screened or who have never been screened for breast, cervical, and colorectal cancers. Information in this compendium is expected to contribute to an increase in cancer screening rates among underserved women.

 

Wabano Centre for Aboriginal Health: "Migizi Giizis" The Eagles are Returning: In Search of Good Medicine/A Peer Education Project (Ontario)
Lead/Recipient: The Wabano Centre for Aboriginal Health is an organization that creates and delivers culturally-sensitive services to prevent ill health, treat illness and provide support and aftercare.
Partners: City of Ottawa; Inuit Tapiriit Kanatami; Minwaashin Lodge; Métis National Council; Métis Nation of Ontario; National Association of Indian Friendship Centres; Native Women's Association of Canada; Odawa Public Health; Tewegan House; Assembly of First Nations.
Funding: $162,000
Duration: May 4, 2009 – March 31, 2010
In brief: This project focused on the development and delivery of culturally relevant performances on modifiable cancer risk factors for off-reserve Aboriginal populations. The performances used traditional Aboriginal communication styles (such as storytelling, puppet-making, and mask-making) to ensure that the public health messages on cancer were meaningful and resonant with the target audience. Members of the Inuit, Métis, and First Nations populations were trained as performers and educators to produce a series of performances that promoted messages on cancer.

 

Willow Breast Cancer Support Canada: Breast and Below the Belt: Hereditary Women's Cancer Support Canada (National)
Lead/Recipient: The Willow Breast Cancer Support Canada is a national non-profit organization whose mission is to provide accessible, community-based, survivor-driven information and support services to help those living with breast cancer.
Partners: Rethink Breast Cancer; Juravinski Cancer Centre; Women's College Hospital; BC Cancer Agency; Canadian Association of Genetic Counsellors; Hereditary Breast and Ovarian Cancer Society of Alberta; University Health Network; L'Chaim Cancer Support Group for Jewish Women; Hereditary Breast and Ovarian Cancer Foundation Montreal; University of Toronto – Cancer Genetics Program; Canadian Breast Cancer Network; Centre for Global E-Health Innovation; Ovarian Cancer Canada.
Funding: $220,400
Duration: June 23, 2009 – March 31, 2010
In brief: This project developed an information and support network for Canadian women diagnosed with the BRCA gene. These women have up to an 85 percent lifetime risk of developing breast cancer and up to a 55 percent chance of developing ovarian cancer. Project activities included: the creation of an e-health web-based portal and social networking website for BRCA-positive women in Canada; the development and dissemination of an information and awareness booklet about the BRCA gene; and the implementation of peer support group leadership training for BRCA-positive women to enable them to start support groups in their own communities.

 

Arctic Health Research Network - Yukon: Increasing Education and Awareness of HPV in the Yukon (Yukon)
Lead/Recipient: The Arctic Health Research Network's mandate is meaningful engagement of Northerners in health research focused on Northern health priorities, with results contributing to lasting health improvements. It also includes dissemination of research results, training of health researchers, and knowledge translation to ensure transfer of results to inform the development of Northern policies and programs.
Partners: Public health professionals; epidemiologists; First Nations elders; cancer interest groups in the Yukon.
Funding: $264,412
Duration: August 8, 2011 – February 7, 2013
In brief: This project will increase awareness and improve education about HPV prevention, screening and vaccination among Aboriginal and non-Aboriginal girls and women in the Yukon. In collaboration with the five major linguistic regions in Yukon, this will be achieved through the development and implementation of education tools and an awareness campaign.

 

Children's Cancer Projects

 

British Columbia Children's Hospital, Division of Oncology, Hematology and Bone Marrow Transplantation: Educational and Vocational Support for Survivors of Childhood Cancer (British Columbia )
Lead/Recipient: The BC Children's Hospital's Division of Oncology, Hematology and Bone Marrow Transplantation improves the health and welfare of children in British Columbia living with cancer and blood disorders.
Partners: BC Cancer Agency; BC Cancer Parents Association; Provincial Health Services Authority; Vocational Counsellors in Canadian Pediatric Oncology Programs.
Funding: $95,000
Duration: March 25, 2009 – March 25, 2010
In brief: This project addressed the needs of 16 to 25 year-old childhood cancer survivors through the development and evaluation of an educational and vocational counselling program. Building on the work of the Pediatric Oncology Group of Ontario and their "Successful Academic and Vocational Transition Initiative," the project established and implemented an Individualized Educational and Vocational Plan (IEVP) for each patient to harness their strengths and identify their challenges, including comorbidities and disabilities as a result of cancer treatment, missed school time due to illness, psychological barriers to education and vocation, and lack of job experience.

 

Candlelighters Childhood Cancer Foundation Canada: Online Development of the C17 Network (National)
Lead/Recipient: The Childhood Cancer Foundation - Candlelighters Canada works to improve the quality of life of children living with cancer and that of their families through a variety of initiatives.
Partners: The C17 Council is comprised of the 17 Canadian Pediatric Oncology/Hematology Directors from across Canada.
Funding: $100,000
Duration: January 14, 2009 – March 31, 2010
In brief: This project provided an opportunity to expand the work and reach of Canada's seventeen pediatric oncology hospitals and treatment centres (C17 Network). The project supported the development of online communications for research and information sharing about children's cancers. The online tools facilitated communication and dialogue among children's hospitals, research groups, parent and survivor groups, and the Canadian public. The project enabled the sharing of resources and pediatric cancer information in a more streamlined fashion by housing a web-based document storage system, a database of active clinical trials and a filing system for regulatory documents pertaining to clinical trial enrolment.

 

Candlelighters Childhood Cancer Foundation Canada: CANteach: A Childhood Cancer Education Program for Teachers (National)
Lead/Recipient: The Childhood Cancer Foundation - Candlelighters Canada improves the quality of life of children with cancer and their families by undertaking and supporting national initiatives that aim to increase survival rates, improve the well-being of children and to find a cure for all childhood cancers.
Partners: The Hospital for Sick Children; Curriculum Services Canada; Novopharm.
Funding: $100,000
Duration: March 25, 2009 – March 25, 2010
In brief: This project addressed gaps in information and support for children and their families through the development and testing of a new education model to increase Canada-wide information transfer. This model was designed to assist teachers to deal effectively with issues in the classroom that pertain to childhood cancers and to optimize the level of support offered by the school system to children and families living with cancer, especially during the period of re-integration into the school environment. An educational leukemia DVD, providing web-based teaching aids and information for teachers working with children and adolescents impacted by cancer, was produced and an online support program called the "Teen Connector" was created. The project also provided training tools to health professionals to guide them in providing psychosocial support to children with cancer and improve professional education.

 

Candlelighters Childhood Cancer Support Programs Inc.: National Coalition of Childhood Cancer's Agencies (National)
Lead/Recipient: Candlelighters Childhood Cancer Support Programs Inc. meets the challenges faced by children and their families as they cope with childhood cancer.
Partners: Kids with Cancer Society of Northern Alberta; ChildCan; BC Children's Hospital Childhood Cancer Parents Association.
Funding: $29,238
Duration: March 17, 2009 – March 17, 2010
In brief: This project brought together five member agencies to form the National Coalition of Childhood Cancers Agencies to share information and resources such as best practices and program models with childhood cancer groups across the country. The Coalition enabled those member agencies to strengthen and expand their program delivery and build on their successes at a national level and also assisted smaller groups to increase their capacity to provide meaningful services in each of their regions.

 

McMaster University: Health Related Quality of Life in Survivors of Neuroblastoma who have Undergone Megatherapy and Autologus Hematopoietic Reconstitution: A National Perspective – Phase I (Ontario)
Lead/Recipient: McMaster University's Department of Pediatrics improves the health of children and adolescents through excellence in patient care, research, teaching and community service.
Partners: Pediatric oncology hospitals and treatment centres across Canada (McMaster Children's Hospital-Hamilton; Sick Kids-Toronto; Alberta Children's Hospital-University of Calgary; BC Children's Hospital-Vancouver; Montreal Children's Hospital-McGill-Montreal; Cancer Care Manitoba-Winnipeg; Hôpital Saint-Justine-Montreal; Children's Hospital of Western ON-London; Children's Hospital of Eastern ON-CHEO-Ottawa; Kingston General Hospital-Kingston; Centre hospitalier-Universitaire du Québec-CHUQ-Québec; IWK Health Centre-Halifax; Stollery Children's Hospital-Edmonton @ Univ. of Alberta; Janeway Children's Hospital-St-John's, NFLD, Saskatoon, Regina, Sherbrooke).
Funding: $99,995
Duration: March 10, 2009 – March 10, 2010
In brief: The primary objective of this project was to improve the long term outcomes for the increasing number of survivors of advanced childhood neuroblastoma who must undergo megatherapy. Collaboration with all 17 pediatric oncology centres was obtained. A national health-related quality of life survey of survivors of megatherapy for advanced childhood neuroblastoma was developed and data from six of the centres was collected and analyzed to determine best treatment practices and assess the effects of various treatments on survivors as a means of furthering knowledge in cancer treatment. There are plans to further data collection at all pediatric oncology centres.

 

Seniors' Cancer Projects

 

Active Living Coalition for Older Adults (ALCOA): WELL-FIT: A Holistic Model of Active Living for Older Adults Living with Cancer and Their Partners in Care (National)
Lead/Recipient: The Active Living Coalition for Older Adults (ALCOA) is an organization that strives to serve as the national collective voice for older adults regarding issues related to aging and healthy active living, and tries to encourage older adults to maintain their well-being through physical activity.
Partners: The University of Waterloo; the Grand River Regional Cancer Centre; Parks and Recreation Associations, Regional Health Networks/Authorities; local and regional seniors' organizations.
Funding: $100,000
Duration: March 28, 2008 – March 28, 2009
In brief: The overall objectives of the WELL-FIT project were to develop a model that would increase the participation of older adults living with cancer in a physical activity-based cancer program, and to provide the documentation that would allow similar programs to evolve across Canada. During the project a model exercise program to reduce barriers and encourage senior cancer patients to be physically active was developed; the model was presented and disseminated in a step-by-step manual. A pamphlet on the benefit of physical activity was also developed and disseminated.

 

British Columbia Psychogeriatric Association (BCPGA): Exploring the Impact of Cancer on Mental Health: Seniors' Experiences and Perspectives (British Columbia)
Lead/Recipient: The British Columbia Psychogeriatric Association (BCPGA) enhances interdisciplinary services, education and research in support of the mental health needs of the elderly.
Partners: Congress of National Seniors Organizations; Canadian Coalition for Seniors Mental Health; National Advisory Council on Aging; Canadian Mental Health Association; Health Promotion Division-Veterans Affairs; Canadian Ethnocultural Council; Manitoba Network of Psychogeriatric Program Specialists; Older Persons Mental Health and Addictions Network; Nova Scotia Senior Citizens Secretariat; Queen's University; Ontario Psychogeriatric Association; ClSC Rene Cassin Social Gerontology Center Centre on Aging; University of Victoria; Gerontology Centre-Simon Fraser University; and the Senior Peer Counselling of British Columbia Association.
Funding: $99,775
Duration: March 19, 2008 – March 19, 2009
In brief: The objectives of this project were to enhance seniors' personal coping and self-care capacities during the cancer journey, and to develop the capacity of the health care system to support the mental health needs of older Canadians with cancer. Data that was gathered from seniors guided the development and dissemination of a booklet and a report for care provides; these resources will educate seniors and their health care providers on the difficulties faced by senior cancer patients and how these difficulties can impact their mental health.

 

Centre de recherche et d'expertise en gérontologie sociale (CREGES) : Suffering among Senior Women Living with Cancer (Québec)
Lead/Recipient: Centre de recherche et d'expertise en gérontologie sociale (CREGÉS) improves services and practices in social gerontology for the health and well-being of seniors by means of research, education and knowledge transfer.
Partners: Centre de Santé et Services Sociales (CSSS) Cavendish; the Centre Hospitalier Universitaire de Montréal (CHUM); l'Université du Québec à Montréal (UQAM); and seniors.
Funding: $73,069
Duration: March 19, 2008 – March 19, 2009
In brief: This project contributed to the mental and social well-being of older women with terminal cancer by exploring the importance of communication for women on their cancer journey, advancing psychosocial knowledge and care management, and improving the overall quality of life for senior women living with cancer.

 

Lakehead University c/o Centre for Education and Research on Aging & Health: Improving the End-of-Life Care for Aboriginal Elders with Cancer and Other Chronic Diseases (Ontario)
Lead/Recipient: The Centre for Education and Research on Aging and Health (CERAH) of Lakehead University uses research to advance health and social care for an aging population, particularly that of First Nations communities
Partners: Kenora Chiefs Advisory; the Gizhewaadiziwin Health Access Centre; and the Northwestern Ontario Community Access Centre.
Funding: $100,000
Duration: March 28, 2008 – March 28, 2009
In brief: The objective of this project was to improve the palliative care knowledge, skills, and confidence of health care providers in First Nations communities in order to improve the end-of-life care of Aboriginal Elders with cancer and other chronic diseases. A 15-hour educational curriculum, six pamphlets on palliative care were developed and palliative care teams were created within the communities and provided with care guidelines and protocols.

 

International and Pan-Canadian Projects

 

Campaign to Control Cancer (C2CC): Global Leadership Forum for Cancer Control (National)
Lead/Recipient: The Campaign to Control Cancer is a Canadian coalition of more than 70 organizations whose mission is to fundamentally transform Canada's response to cancer from one of fear and insecurity to one of strength and control by engaging the public in new ways to control cancer.
Partners: American Institute for Cancer Research; C-Change, a Washington-based cancer prevention organization; participants from across Canada and the globe.
Funding: $35,000
Duration: September 25, 2009 – March 31, 2010
In brief: This project consisted of a plenary session that was presented at the 2009 Go Public Conference in Ottawa, Ontario. The session, titled "Cross-Sectoral Leadership – People + Performance + Purpose," discussed the benefits of developing cross-sectoral and cross-cultural partnerships when addressing the complex social and policy issues of cancer control.

 

Canadian Partnership Against Cancer (CPAC): Coalitions Linking Action and Science for Prevention (CLASP) Focused on Northern and Aboriginal Populations (National)
Lead/Recipient: The Canadian Partnership Against Cancer (CPAC) is an independent organization funded by the federal government to accelerate action on cancer control for all Canadians. The Partnership works with cancer experts, charitable organizations, governments, cancer agencies, national health organizations, patients, survivors and others to implement the Canadian Strategy for Cancer Control.
Partners: Stakeholders and health authorities from the Yukon and the Northwest Territories, British Columbia, Saskatchewan, Manitoba, Northern Ontario and Quebec; the Chronic Disease Prevention Alliance of Canada; Green Communities Canada; the Federation of Saskatchewan First Nations.
Funding: $2,970,000
Duration: January 06, 2010 – March 31, 2012
In brief: The Coalition Linking Action and Science for Prevention (CLASP) aims to improve the health of communities and of Canadians by bringing together coalitions of organizations from multiple provinces and territories to integrate cancer prevention with other chronic disease prevention strategies. CLASP projects also advance public health efforts in chronic disease prevention in Aboriginal populations and Northern communities. In particular, these efforts focus on the reduction of health disparities among vulnerable populations and improving individual and population health. Three demonstration projects are supported: chronic disease prevention among First Nation Communities in Saskatchewan and Manitoba; promoting healthy eating for children in Yukon/NWT/BC and Quebec; and implementing active travel plans to and from school for children in seven provinces.

 

International Cancer Control Congress (ICCC) Association (International)
Lead/Recipient: The ICCC Association is a not-for-profit organization that has hosted three international cancer control congresses. These congresses provide venues for countries and cancer stakeholders to work together on cancer control.
Partners:  
Funding: $66,460
Duration: September 1, 2009 – March 31, 2010
In brief: The funding allowed the ICCC to conduct an evaluation of the Congress to determine how it fostered international collaboration; contributed to global cancer awareness; and increased knowledge transfer between cancer stakeholders. This project also enabled the ICCC to create abstract CDs, books containing Congress presentations and a final report of the Third Congress, held in November, 2009. These products allowed the ICCC to share scientific and policy-related cancer control information with governments and cancer organizations that are developing sustainable, population-based cancer control strategies.

 

Pan American Health Organization: Preventing Cervical Cancer in Latin America (International)
Lead/Recipient: The Pan American Health Organization (PAHO) is an international public health agency working to improve health and living standards of the countries of the Americas. It serves as the specialized organization for the health of the Inter-American System and also serves as the Regional Office for the Americas of the World Health Organization. PAHO works in the area of cancer through its large overarching Latin American and Caribbean Action Plan Against Cancer.
Partners: Ministries of Health in Guatemala, Honduras, and Argentina.
Funding: $298,000
Duration: February 26, 2010 - May 26, 2011
In brief: This project raises awareness of cervical cancer screening and improves the quality of screening programs and pre-cancer treatment services in three countries (Argentina, Honduras and Guatemala). The work involves: information dissemination to prevent cervical cancer in women who are at highest risk; re-training of primary and specialized health care providers; and the development of indicators to measure impact within the female population. Results will be shared with Latin American and Caribbean countries, as well as with various stakeholders.