ARCHIVED: Appendix B: Congenital anomalies surveillance in Canada: results of a 2006-2007 survey on availability of selected data variables in Canadian provinces and territories - Variables and data

 

Appendix B

Survey of Variables and Data Available for Congenital Anomalies Surveillance

Province/Territory:
Name of surveillance system:

Variable Version Format Source of data Comments
1. Date of delivery
  • electronic
    yes no
  • paper
    yes no
  • day and month and year
  • other (specify):
   
2. Mother's place of residence at delivery
  • electronic
    yes no
  • paper
    yes no
  • name of Province/Territory
  • health region
  • Standardised Geographic Classification (Stats Can)
  • postal code
  • other (specify):
   
3. Mother's age or date of birth
  • electronic
    yes no
  • paper
    yes no
  • years of age at delivery
  • years of age at estimated date of delivery
  • year of birth
  • date of birth
   
4. Father's age or date of birth
  • electronic
    yes no
  • paper
    yes no
  • years of age at delivery
  • year of birth
  • date of birth
   
5. Ethnicity background
  • electronic
    yes no
  • paper
    yes no
  • mother
    • ethnicity
    • country of birth
    • aboriginal (First Nations, Inuit, Métis)
  • father
    • ethnicity
    • country of birth
    • aboriginal (First Nations, Inuit, Métis)
  • other (specify):
   
6. Parental socio-economic status
  • electronic
    yes no
  • paper
    yes no
  • mother
    • education
    • occupation
  • father
    • education
    • occupation
  • other (specify):
   
7. Prenatal investigations
  • electronic
    yes no
  • paper
    yes no
  • amnioscentesis
  • ultrasound
  • maternal serum screening
  • other (specify):
   
8. Place of delivery information
  • electronic
    yes no
  • paper
    yes no
  • hospital of delivery
  • other (specify):
   
9. Pregnancy outcome
  • electronic
    yes no
  • paper
    yes no
  • live birth
  • length of follow up:
    • at birth
    • 7 days
    • 28 days
    • 1 year
    • 1 year and greater
  • dead fetus
    • less than 20 weeks
    • 20 weeks or greater
   
10. Interruption termination) of
pregnancy
  • electronic
    yes no
  • paper
    yes no
  • spontaneous/miscarriage
  • induced/surgical termination
  • other (specify):
   
11. Plurality
  • electronic
    yes no
  • paper
    yes no
  • singleton
  • multiple
  • other (specify):
   
12. Sex
  • electronic
    yes no
  • paper
    yes no
  • female
  • male
  • indeterminate
  • unknown
  • other (specify):
   
13. Birth weight
  • electronic
    yes no
  • paper
    yes no
  • grams
  • other (specify):
   
14. Gestational age (best estimate)
  • electronic
    yes no
  • paper
    yes no
  • completed weeks
    • dates (last menstrual period/LMP)
    • ultrasound
    • clinical examination
   
15. Diagnosis of congenital
anomaly
  • electronic
    yes no
  • paper
    yes no
  • ICD-9
    last year used:
  • ICD-10
    first year used:
  • RCPCH (former BPA)
  • text description
  • other (specify)
   

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